Marlene Lutkenhoff, RN, MSN

    This will be an overview of the new Health Care Guide for Parents of Children Living with Spina Bifida. This guide is a roadmap as you move along the experience of raising a child with Spina Bifida. It is for parents to use when you want to look ahead to see what is down the road, when you want to plan the next step, or as a resource for direction and information. Instead of saying “I wish someone had told me that,” use the free parenting tips offered and forms included in this guide.