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CDs Include:
PRE-CONF LEADERSHIP INSTITUTE
- GMFT Report
- Organizing for Success – Sheryl Paul
GENERAL SESSIONS
- Challenges of Spina Bifida Care in the Next 20 years – Doug Sorocco, Cheng, Webb, Brei, Mukherjee, Blount
- Wednesday Celebration Luncheon Keynote Speakers – Scott and Pat Price
ADULT
- Pursuing Our Passions – Julie Yindra
- “Mirror, Mirror:” Seeing Yourself Through “able” Eyes – Hope Ratcliff & Julie Yindra
- Maximizing Your Health as an Adult – Tom Webb, MD
- Adult Urologic Issues in Spina Bifida – Eric Rovner, MD
- Neurosurgery: SB Issues in Adults – Michael Partington, MD
- Safety Training Session – Patty Dissell / Local Police
- ADA and Beyond: How to Make Your Home Accessible – Ramesh Gulatee
- The Benefits of Sports and Recreation – Jill Farmer, Karey Kleinhenz
PSYCHOSOCIAL / MEDICAL
- Secondary Conditions of People Living with Spina Bifida – Iijing Ouyang
- Project SEARCH: Vocational & Educational Planning – Sharon Ramey, Marcie Mendelsohn
- The Impact of Parenting on Development Among Children with Spina Bifida – Heather Taylor, Ph.D.
- Family Centered Parenting: Parenting Tips in a Family With a Child With Special Needs – Richard Horowitz
- Building Skills for Independence – Margaret L. Calvery, Ph.D.
- Lower Extremity Issues in Children with Spina Bifida – Vish Talwalkar, MD
- How to Talk: Communications Skills to Help Reduce Stress – Kristen Sorocco, Ph.D.
MEDICAL
- Fathering in a Family with a Child with Special Needs – Richard Horowitz
- Proper Seating and Wheelchair Fitting for the Person with Spina Bifida – Joe Thieme (2 CDs -- $20.00)
- Causes and Risk Factors for Spina Bifida – Dr. Robert Greene
- Pain Management – Kerstin M. Sobus, MD
- Non-Surgical Management of the Bladder in Children with Spina Bifida – Elizabeth Yerkes
- Spinal Deformities in Myelomeningocele – Lee S. Segal, MD
- Surgical Management of the Bladder in Children – Earl Cheng, MD
- Tethered Cord – Robin Bowman
- Management of the Neurogenic Bowel – Jean Brown
- Chiari and Hydrocephalus – Jeffrey P. Blount, MD
- Wound Care – Kellie Mitchum
- Latex Allergy: 2007 – Suzanne McKee
- Bringing You Protected Tomorrows: Creating the Future Care Plan for Family Members with Special Needs – Mary Anne Ehlert
- The Art of Self Catheterization – Jean Brown
- Aquatic Interventions for Children and Ideas for Implementing Them – Keri Petrofsky
- Genetic and Environmental Study of Neural Tube Defects – Progress Update from Duke University Medical Center – Debbie Siegel
- Supporting Healthy Sibling Relations in Spina Bifida – Melissa Bellin, Ph.D.
- Making the Transition: Everything You Need to Know for a Rewarding College Experience – Matt Davis
MEDICAL or PSYCHOSOCIAL or QUALITY OF LIFE
- Analysis of Agent Orange Database – Melissa Danielson
- Healthcare, Insurance and You – Can I Get What I Need? – Deborah Lester, Jules Hassanein
- Planning Your Healthy Future: Developing Healthy Habits for the Future – Sue Mukherjee, MD
- The Art of the 3”C’s”: Cooperation, Collaboration, Compromise – All Elements of Establishing an Adult Spina Bifida Clinic – Karen Rauen
- New Research on the Brain and Learning in Spina Bifida: A Sandi Update – Jack M. Fletcher, Ph.D.
- Social Skills – William G. Kronenberger
- Health Guide for Parents of Children Living with Spina Bifida – Marlene Lutkenhoff
- Driving as it Relates to Spina Bifida – Suzanne Farnan-Maddux
GENERAL INTEREST / GROUP MEMBER
- Leadership Institute Branding – Amanda Darnely, Jim Garzione
- The Need for Transition Support for Youth with Spina Bifida – Dr. Andrea Hart
- Early Signs of Non-verbal Learning Disability and Effective Interventions – Julie Yindra
- Leadership Institute The Board and the Executive Director: Building a First-Class Relationship – Eric Schmall
- Getting Ready with Assistive Technology: For School, Job and Living Independently – Sue Lin
- Adapted PE for Youth With Spina Bifida – Keri Petrofsky
- Using Youthhood.org as a Transition Planning Tool – Julia Washenberger
- Leadership Institute Adopt a Ghost – Tanya McAdory, Patty Dissell, Kiley Carlson
- Leadership Institute – PR Session -- Gini
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